Change approach to diagnosing autism to ease wait times, stress: B.C. doctor

Society says autism spectrum disorder affects one in 66 Canadians aged five to 17

Lindsay Roberts is home-schooling her son, not by choice but because the five-year-old boy would be prone to hitting people, screaming and suddenly running away if he became overstimulated in a classroom without any support.

“My little guy couldn’t start kindergarten because he can’t access support without a diagnosis,” said Roberts, whose son Colton is showing symptoms of autism, the same neurodevelopmental disorder that affects his eight-year-old brother, Travis.

So far, Colton has seen a pediatrician he was referred to by his family doctor but is still waiting to see another specialist who could assess and diagnose his condition.

“The wait list for the pediatrician is a year and then the wait list for the actual assessment with the psychiatrist is another year to 18 months,” said Roberts, who lives in Lake Country.

“The system doesn’t offer support until the child is suspended many times or expelled. Then we can apply for support but that’s really hard on a child’s self-esteem.”

Many parents choose to jump the public queue by getting a private assessment but that’s not possible for those who can’t afford the extra expense, Robertson said, adding funding for autistic children is not available until after a diagnosis and can’t be used to pay for assessments retroactively.

Dr. Lonnie Zwaigenbaum, chair of the Canadian Pediatric Society’s task force on autism spectrum disorders, said the increasing prevalence of the condition calls for general pediatricians and other primary health-care providers to be trained and supported to assess and diagnose it and provide follow-up care.

“There have been pockets of innovation in Canada, really demonstrating that it’s possible to support community pediatricians to do some of that assessment work,” he said, adding that is the case in parts of Ontario, B.C. and, to a lesser extent, in Alberta.

“This really needs to be part of the standard of care in Canada and to not do so contributes to disparities in access and also bottlenecks in the system and likely contributes to lengthy wait lists,” he said.

READ MORE: New study suggests autism overdiagnosed: Canadian expert

The involvement of a team of health-care providers who assess autism is not always necessary and impractical in some areas, Zwaigenbaum added.

The society has released recommendations for a more flexible diagnostic approach that would include general pediatricians, not just doctors and psychiatrists licensed to do so, using a range of resources including screening tools and a checklist for assessments involving conditions that could be associated with autism, such as dental, vision and hearing issues as well as sleep, anxiety and ADHD.

Functional challenges that could require physical, speech-language and educational supports are also considered, as well as questionnaires for parents and teachers, and determining whether families are getting help with any social assistance needs.

Zwaigenbaum said the approach would address concerns about lack of access in rural and remote regions where developmental pediatricians aren’t available when parents become concerned about developmental issues including lack of response when a child’s name is said, delay in language and limited eye contact.

“You may not even have a pediatrician in town so trying to come up with a more flexible diagnostic assessment system that can be applied across the diversity of settings in Canada, I think, was really an explicit goal of this task force,” he said.

Zwaigenbaum said all children should be monitored for early behavioural signs of autism spectrum disorder during doctors’ visits regarding their development.

The aim is to use the recommendations as a blueprint for autism care in medical school residency programs as well as continuing education courses, Zwaigenbaum said.

The society says autism spectrum disorder affects one in 66 Canadians aged five to 17, with boys diagnosed four times more often than girls.

Susan Watts, a family support representative for Autism Canada, said the society’s position on the role of general pediatricians would allow for earlier diagnosis, reducing stress among children and parents involving a condition that can affect their daily lives in profound ways.

Watts said a patchwork of diagnostic approaches exists across the country, with Quebec licensing only psychiatrists to diagnose autism while the requirements in other jurisdictions are not as strict.

That means children who moves from one province to another after being diagnosed may have to be rediagnosed and go through the waiting process all over again, she said.

Camille Bains, The Canadian Press

Like us on Facebook and follow us on Twitter.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

School buses for SD91 to start running from June 1

Parents urged to drop off and pick kids up whenever possible

COVID-19 highlights lack of connectivity in First Nations communities

Many don’t have access required to utilize online platforms, says First Nations Technology Council

Salmon closures announced for Skeena and Nass watersheds

DFO notice expands on May 21 chinook ban throughout Skeena watershed

New traffic lanes for Six Mile west of Burns Lake coming soon

Construction to begin on lane extension and traffic improvement

Coastal GasLink pipeline work ramps up

With spring thaw ending, workers start to arrive for summer season

VIDEO: Injured bald eagle rescued in B.C. First Nations community

Bird suspected injured in fight, whisked off to Coquitlam rehab

Love flourishes at Peace Arch Park, but COVID-19 concerns loom

South Surrey park becomes only place for international couples to meet

UPDATE: B.C.’s Central Kootenay issues evacuation orders for hundreds of residents due to flooding

An evacuation alert covers all areas except the Cities of Castelgar and Nelson

Introducing the West Coast Traveller: A voyage of the mind

Top armchair travel content for Alaska, Yukon, BC, Alberta, Washington, Oregon and California!

PHOTOS: Thousands gather at Vancouver Art Gallery to protest racism

Rally is in response to the deaths of black Americans and a Toronto woman

Number of students returning is a wild card as B.C. schools reopen Monday

A common model will see other teachers work four days a week in class then the fifth remotely,

Toronto Raptors’ Ujiri says conversations about racism can no longer be avoided

Thousands have protested Floyd’s death and repeated police killings of black men across the United States

Most Read